“When Do I Get a Break?” and Other Thoughts: Learning About an Exposure to a New Pandemic

Many of you know that I’m a cancer patient. I felt a lump in my breast December 10th and was diagnosed on December 19th. My life hasn’t been the same since.

I had my mastectomy on February 24th, which was the same week that the Biogen meeting screwed over Boston with COVID-19 infections. That news didn’t become public until later—after I already had been to follow-up appointments at five medical institutions with no extra precaution against the virus.

From March 11th onward, I saw different medical institutions change their protocol with intake for patients and visitors. The procedures change daily as new information arises.

I had my egg retrieval on March 19th. I was ordered to be monitored by someone for 24 hours after the procedure. I was told this took priority over any call for social distancing. Two friends took shifts in caring for me in their homes. Each had a spare room where I stayed and had next to no contact with them.

Below is a picture of my breakfast in my spare room at one friend’s house on March 20th, the day after my egg retrieval. A few hours after I ate this breakfast, I got a call from one hospital stating that I had been briefly exposed to a healthcare worker, who later tested positive for COVID-19.

90315473_10112581220036010_5333621526409248768_n.jpg

Continue reading

Too Busy to Play Telephone: Practicing Consent as a Lifestyle

During my first few weeks of recovery from surgery, my family visited me. My sister flew in a couple days before my mastectomy and stayed for a week. She overlapped by a day with my parents, who stayed in a hotel near my home for almost a week and a half.

By the end of my parents’ last visit with me, my mom raised the topic of how people didn’t know how to talk to me. That is why some of them hadn’t said anything to me about my breast cancer diagnosis.

For context, this is an issue that came up quite a bit after I was initially diagnosed. My sister asked what she could share. A few cousins asked what they could share. Somehow other members of my extended family aren’t sure what they can or cannot say about my diagnosis to others.

Some relatives wanted to share my story with others, and other relatives were saying that they shouldn’t. I heard this from a few different sources in my family.

My mom said that some relatives told others to “just pray” for me—or at least that’s the story in this never-ending game of telephone.

14763488265_9ed160aea9_o.jpg

Image from Flickr

Continue reading

Resisting the Attraction to Distraction

When I look at my life, I think it aesthetically looks pleasing. I’ve grown a robust network of kind and amazing friends and other loved ones. I have a job I like. My basic needs like food, shelter, and water are fulfilled. That is more than what I’ve had in the past. That is more than what others have. Like the picture of the sunrise and trees below, life has been a blur, but I’ve been doing my best to still appreciate what’s beautiful.

IMG_6275.JPG

Since I was diagnosed with breast cancer, I’ve had all types of flashbacks of my life, including challenges, accomplishments, goals, milestones, and a wide range of experiences from the beautiful to the ugly. If I was able to tackle all of those things, why should breast cancer be any different?

In conversations with different people, I have received advice to distract myself. I feel ambivalent about that tip.

Continue reading